A case report of Patient and Public Involvement and Engagement activities to explore the potential of zines as an arts-based tool to target the stigma of pain.

Authors

  • Camille Leteurtre INPUT Pain Unit, Guy’s & St Thomas’ Hospital NHS Foundation Trust Author
  • Whitney Scott Health Psychology Section, Institute of Psychiatry, Psychology & Neuroscience. King’s College London Author https://orcid.org/0000-0002-2529-9083
  • Colleen Swaby Author

DOI:

https://doi.org/10.59210/m5xrgh02

Keywords:

Pain, self-stigma, stigma, arts, zine, patient and public involvement and engagement

Abstract

There is increasing evidence that stigma negatively affects the health and quality of life of people living with persistent pain. While there is a need to tackle stigma, the few studies investigating potential interventions to date have focused on individual-level interventions. However, self-stigma is experienced alongside external stigma that manifests in both private and public spheres, including interactions with healthcare providers and policies that affect the lives of people with pain. This case reports explored the potential to use zines, an art-based medium rooted in social justice activism, as an anti-stigma tool, in the context of persistent pain. This paper describes the collaborative Patient and Public Involvement and Engagement (PPIE) process to (1) develop and deliver zine-making workshops and (2) shape future research to understand zines as a potential tool to target pain-related stigma across the multilevel health ecosystem. Collaboration with patient advisors highlighted the need for inclusivity to be at the centre of zine workshops. Then considering potential for future research, people living with pain themselves and general practitioners were identified as priority groups to evaluate the impact of zines on pain-related stigma. This case report documents and shares learning about how PPIE can provide essential insights into developing and evaluating an inclusive intervention with potential to target stigma for people with pain.

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Published

2023-01-01

Issue

Section

Articles

How to Cite

A case report of Patient and Public Involvement and Engagement activities to explore the potential of zines as an arts-based tool to target the stigma of pain. (2023). Pain and Rehabilitation, 53(1), 22-30. https://doi.org/10.59210/m5xrgh02